Together We Are Stronger

Supporting families worldwide in their battle with  Dyskeratosis Congenita and Telomere Biology Disorders.

Our Mission

A Community of Telomere Biology Disorders

Our mission is to provide information and support services to families worldwide affected by Dyskeratosis Congenita and Telomere Biology Disorders, to encourage the medical community’s research in finding causes and effective treatments, and to facilitate improved diagnosis by educating medical providers.

Research

Team Telomere wants to make sure you are an educated and empowered advocate, this means having access to the most up-to-date information. To find current research and clinical trials you can visit the US National Library of Medicine’s website. You can also see what the Team Telomere grant has funded by visiting our Physician Resource page.

Clinical Guidelines

The clinical care guidelines for Telomere Biology Disorder-associated medical complications provide background and general clinical guidance as we await comprehensive clinical trials on the management of the multiple complications in DC/TBD.

Make A Donation

Your help makes it possible to meet patients’ needs, hold impactful conferences, develop fresh education programs and fund research for the cures, along with improved treatments until cures are discovered.

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