Apply for a Care Package

Our team has a favorite saying “it takes a village”, and that means taking care of each and every person in our community. Feeling connected and supported is a vital part of navigating a rare disease and we are here to come alongside you. Our care packages include some items that will make you smile as well as informational brochures and a copy of the Clinical Guidelines.  Both children and adults are encouraged to apply!  If you’ve been diagnosed with short telomeres and you’ve never received a care package from us, please sign up today!

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