There are so many ways to join the fight against Telomere Biology Disorders. Your financial support and personal involvement helps families and provides the medical community with the funds needed to research finding causes, effective treatments and to educate other medical providers.

Join #TeamTelomere

By joining #teamtelomere and pledge to raise a minimum of $200 for Team Telomere, we’ll hook you up with a great race shirt and reimburse your race fee up to $75. If you raise $1,000 or more, we will cover the entire race fee! Just hang on to your race entry confirmation, raise some money, and we’ll virtual high five you at the finish line.

Team Telomere Turkey Trot

Each November we ask you to join us in a local Turkey Day race in your area. Simply print out the bib and snap a picture of yourself and your friends and family, be sure to use #TTTT2022 on social media! To fundraise for your trot, send us an email to and we set you up with your Crowdrise page! Get your wobble on before or after you get your gobble on!


TeamTelomere depends on the commitment, creativity, talent, and energy of its volunteers. They are our local ambassadors, and we rely on their event organizing skills to support patients, family, and friends in their community. Their work also contributes our mission to provide information and support services to families worldwide affected by Dyskeratosis Congenita and Telomere Biology Disorders.


  • Learn about Dyskeratosis Congenita and Telomere Biology Disorders
  • Make an impact by raising public awareness and funds
  • See how programs grow with their support
  • Make new friends