Check out our information video to help explain Telomere Biology Disorders and how they impact your body. For additional help please check out our Resources.
Team Telomere wants to make sure you are an educated and empowered advocate, this means having access to the most up-to-date information. To find current research and clinical trials you can visit the US National Library of Medicine’s website. You can also see what the Team Telomere grant has funded by visiting our Physician Resource page.
The clinical care guidelines for Telomere Biology Disorder-associated medical complications provide background and general clinical guidance as we await comprehensive clinical trials on the management of the multiple complications in TBD/DC.
Our Families Stories blog is being updated. If you have a story or experience you would like to share with others, or if you have an update for your story, please contact us.
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