Team Telomere made Community Chats to be safe spaces for those in the Telomere Biology Disorder community to connect with others, ask questions to experts in the fields, and learn more about TBDs. Each chat has an overarching theme, and individuals can register in advance to attend chats.
May 7, 2024 – 7pm ET
Liver and Telomere Biology Disorders – Dr. Ryan Himes
Liver complications in those with Telomere Biology Disorders can span a range of presentations. Dr. Ryan Himes, a pediatric hepatologist (liver disease specialist) at Ochsner Health in New Orleans and Clinical Assistant Professor at Louisiana State University Health Science Center-Shreveport, is interested in the liver manifestations of telomere biology disorders and the role of liver transplantation for select patients. Join this community chat for a highly informative session and space to ask questions that you may have related to this topic.
June 11, 2024 – 7pm ET
Genetics and TBDs – Ashley Thompson, MS, CGC
With the large number of genes associated with Telomere Biology Disorders, and more being discovered as research progresses, we know there are lots of questions and concerns. Genetic considerations and information can be complex and difficult to navigate. Genetic counselors help individuals determine needed genetic testing, understand genetic risks, and discuss medical and emotional implications of genetic information. Ashley Thompson is a board-certified genetic counselor and experienced researcher with expertise in clinical genetics, hereditary cancer syndromes, and qualitative research. She is part of the psychosocial research team for Telomere Biology Disorders at the National Cancer Institute.