Patient Care Packages

Our team has a favorite saying “it takes a village”, and that means taking care of each and every person in our community. Feeling connected and supported is a vital part of navigating a rare disease and we are here to come alongside you. Our care packages include some items that will make you smile as well as informational brochures and a copy of the Clinical Guidelines.  Both children and adults are encouraged to apply!  If you've been diagnosed with a Telomere Biology Disorder and you've never received a care package from us, please sign up today!

Where Packages Have Been Sent

United States, United Kingdom, Slovenia, Netherlands, Ireland, Japan, Puerto Rico, Singapore, France, Australia, Canada, Tanzania, Bangladesh, Israel, Venezuela, Sweden, Greece

Packages Sent Since Launch

2014-16: 19 sent
2017: 43 sent
2018: 68 sent
2019: 60 sent
2021:57 sent
2022:40 sent

Total: 362

Apply Here

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