Our team has a favorite saying “it takes a village”, and that means taking care of each and every person in our community. Feeling connected and supported is a vital part of navigating a rare disease and we are here to come alongside you. Our care packages include some items that will make you smile as well as informational brochures and a copy of the Clinical Guidelines. Both children and adults are encouraged to apply! If you've been diagnosed with a Telomere Biology Disorder and you've never received a care package from us, please sign up today!
Where Packages Have Been Sent
United States, United Kingdom, Slovenia, Netherlands, Ireland, Japan, Puerto Rico, Singapore, France, Australia, Canada, Tanzania, Bangladesh, Israel, Venezuela, Sweden, Greece
Packages Sent Since Launch
2017: 43 sent
2018: 68 sent
2019: 60 sent
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