Legacy was developed during 2018 with the objective of offering support. Legacy is an opportunity for those who have lost a loved one to a Telomere Biology Disorder to stay connected and informed about what’s going on with the Team Telomere community, including initiative, projects. We want this space available to help move Team Telomere’s shared vision and a connection for those who have lost loved ones to grieve and use their energy to cope and help others within the Team Telomere community. In addition a package will be sent to those that have lost a loved one. We made you a promise in the beginning that you would never be alone. We stand by that promise and want you to know that you still have community surrounding you.

“The reality is that you will grieve forever. You will not ‘get over’ the loss of a loved one; you’ll learn to live with it. You will heal and you will rebuild yourself around the loss you have suffered. You will be whole again but you will never be the same. Nor should you be the same nor would you want to.” Elizabeth Kubler-Ross and David Kessler

Legacy Box Application

To those of you that have lost a loved one to a Telomere Biology Disorder, we’d love to honor them and help comfort you. The Legacy Program was developed to support those that have lost someone from a Telomere Biology Disorder, to ensure you that even through loss you still have community. Please provide the information below so that we may send you a Legacy Box containing items curated especially to recognize your loss.
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