Our Mission

A Community of Telomere Biology Disorders

Supporting families worldwide in their battle with Dyskeratosis Congenita and related Telomere Biology Disorders who often face multiple complex illnesses such as bone marrow failure, lung fibrosis, cancer, and many other challenges.

Our mission is to provide information and support services to families worldwide affected by Dyskeratosis Congenita and Telomere Biology Disorders, to encourage the medical community’s research in finding causes and effective treatments, and to facilitate improved diagnosis by educating medical providers.

Learn more about Telomere Biology Disorders:

Watch our informational video that explains Telomere Biology Disorders and their impact on the body. We have a comprehensive set of resources. For additional information and support, check out the resources below:

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Your help makes it possible to meet patients’ needs, hold impactful conferences, develop fresh education programs and fund research for the cures, along with improved treatments until cures are discovered.

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