There are so many ways to join the fight against DCO and Telomere Biology Disorders. Your financial support and personal involvement helps families and provides the medical community with the funds needed to research finding causes, effective treatments and to educate other medical providers.

Join #TeamTelomere

Your participation in any race (running, biking, swimming, you name it!) while wearing our logo helps to let people know who we are and the money raised helps keep us going. By joining #teamtelomere and pledge to raise a minimum of $200 for Dyskeratosis Congenita Outreach, Inc. and we’ll hook you up with a great race shirt and reimburse your race fee (total value not to exceed $100). Just hang on to your race entry confirmation, raise some money, and we’ll virtual high five you at the finish line.


#TeamTelomere depends on the commitment, creativity, talent, and energy of its volunteers. They are our local ambassadors, and we rely on their event organizing skills to support patients, family, and friends in their community. Their work also contributes our mission to provide information and support services to families worldwide affected by Dyskeratosis Congenita and Telomere Biology Disorders.


  • Learn about Dyskeratosis Congenita and Telomere Biology Disorders
  • Make an impact by raising public awareness and funds
  • See how programs grow with their support
  • Make new friends

Spread Awareness

Spreading public awareness about Dyskeratosis Congenita and Telomere Biology Disorders is one of the most significant ways people can help #TeamTelomere. Because these diseases are rare, it is important to educate others about what they are.

Here are some ways you can help spread awareness:

  • Request brochures and bring them to your health professionals and local medical team
  • Share your personal Story of Hope
  • “Like” us on our Facebook page.

For more information on how to support Team Telomere, you can fill out the form below.

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