Media Read about stories we've found in the news and media about Telomere Biology Disorders. Maine mom pens son’s journey with rare genetic disease Read article here. Heidi Carson Reflects on Widowed Parenting and Finding Meaning Through Rare Disease Advocacy Listen here. New Liver, New Outlook Read article here. New Drug Regimen Proves Ideal for Patient with Rare Genetic Disease Read article here. Gabby’s Camp Quality Story: Doing more than she thought she could Read article here. RARE Health Equity Report: Building a More Inclusive Rare Disease Community Download here. RARECAST: A Next-Generation RNA Therapy Targets Telomere Disorders Listen here. Telomeres and Aplastic Anaemia Read article here. QPS swears in five-year-old boy who dreams of becoming an officer Read article here. « Older Entries
Heidi Carson Reflects on Widowed Parenting and Finding Meaning Through Rare Disease Advocacy Listen here.