Team Telomere in the Media
Former Patient Donates Toys For Kids at Phoenix Children’s Hospital
Layla Sands, Charlotte Teen with One-in-a-Million Genetic Condition Passes Away
Front Royal Family Thankful for 9 Year Old’s New Liver
How Telomere Length Testing Can Save Lives
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Gabrielle Stephens Rare Disorder Causing 7-year-old to Grow Old Before Her Time
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Repeat Dx: Julian’s Stem Cell Transplant Story
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Repeat Dx: Mike Shares His Experience with Dyskeratosis Congenita for Rare Disease Day
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Repeat Dx: Heather Shares Her Experience with IPF for PF Awareness Month
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Team Telomere Songs
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Little Boy with Rare Genetic Disorder Named Honorary Firefighter in Mackay
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A brave little boy, who’s battling a rare life-threatening genetic disorder, has been named an honorary firefighter at Mackay’s Alfred Street fire station. Four-year-old Grayson was given his very own uniform, drove a fire truck and met his heroes. “We just want to fulfill his life with the time we have with him and everything that makes him happy and excited.” – Mum, Rachel Little.