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Media

Read about stories we've found in the news and media about Telomere Biology Disorders.

San Francisco boy with rare bone marrow disease still searching for donor

San Francisco boy with rare bone marrow disease still searching for donor

Read more
Executive Director, Katie Stevens on the Two Disabled Dudes Podcast: A Soft Blanket and a Bold Mission

Executive Director, Katie Stevens on the Two Disabled Dudes Podcast: A Soft Blanket and a Bold Mission

Take a listen!
Of mice and men: WSU team first to mimic our DNA end caps in rodents to study aging on the cellular level

Of mice and men: WSU team first to mimic our DNA end caps in rodents to study aging on the cellular level

Read article here.

WWE Superstar Seth “Freakin” Rollins meets Aaron, a TBD Community Member

WWE Superstar Seth “Freakin” Rollins meets Aaron, a TBD Community Member

Read article here.

‘Something to celebrate’: Community turns out for rainy fundraising walk

‘Something to celebrate’: Community turns out for rainy fundraising walk

Read article here.

Maine mom pens son’s journey with rare genetic disease

Maine mom pens son’s journey with rare genetic disease

Read article here.

Heidi Carson Reflects on Widowed Parenting and Finding Meaning Through Rare Disease Advocacy

Heidi Carson Reflects on Widowed Parenting and Finding Meaning Through Rare Disease Advocacy

Listen here.

New Liver, New Outlook

New Liver, New Outlook

Read article here.

New Drug Regimen Proves Ideal for Patient with Rare Genetic Disease

New Drug Regimen Proves Ideal for Patient with Rare Genetic Disease

Read article here.

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Supporting families affected by Telomere Biology Disorders, including Dyskeratosis Congenita.

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