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Registration is OPEN for the Team Telomere Scientific & Community Summit 2026

Missoula, Montana | July 7 to 10, 2026

Team Telomere invites you to join us for our Scientific & Community Summit 2026 - two concurrent, interconnected experiences united by shared theme and vision.

The Scientific Summit is a dynamic convening for clinicians and researchers exploring the evolving landscape of Telomere Biology Disorders. The Community Summit is a community-centered experience for individuals with TBDs, families, care partners, and bereaved community members, focused on connection, education, and time together.

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Repeat Dx: Mike Shares His Experience with Dyskeratosis Congenita for Rare Disease Day

Repeat Dx: Mike Shares His Experience with Dyskeratosis Congenita for Rare Disease Day

Read article here.
Repeat Dx: Heather Shares Her Experience with IPF for PF Awareness Month

Repeat Dx: Heather Shares Her Experience with IPF for PF Awareness Month

Read article here.
Team Telomere Songs

Team Telomere Songs

Listen to music here.
Little Boy with Rare Genetic Disorder Named Honorary Firefighter in Mackay

Little Boy with Rare Genetic Disorder Named Honorary Firefighter in Mackay

Watch video here. A brave little boy, who’s battling a rare life-threatening genetic disorder, has been named an honorary firefighter at Mackay’s Alfred Street fire station. Four-year-old Grayson was given his very own uniform, drove a fire truck and met...

Colleen, Former Team Telomere President, shares her story

Read article here.
Not All Heroes Wear Capes: Taking on Dyskeratosis Congenita

Not All Heroes Wear Capes: Taking on Dyskeratosis Congenita

Read article here.
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Supporting families affected by Telomere Biology Disorders, including Dyskeratosis Congenita.
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