Rare Disease Day at the NIH: Why Advocacy Matters in the Future of Innovation
Rare Disease Day at the NIH: Why Advocacy Matters in the Future of Innovation By Kendall Davis Rare Disease Day at the NIH is always a powerful reminder of how far the rare disease field has come, and how much work still lies ahead. Hosted by the NIH’s National Center...
Reflection on 2/23 HHS Panel on Innovation on Rare Disease Therapies
Reflection on 2/23 HHS Panel on Innovation on Rare Disease Therapies By Luke Sharon In a political era where public funding is more often questioned than defended, funding for research on rare diseases, advancements, and clinical trials has unfortunately been...
TRACTS Roundtable: Summary and Highlights from January 2026 Roundtable
Development of Novel Therapies for Patients with Telomere Biology Disorders This roundtable sought to set concrete, achievable milestones in the development of novel therapies and curative options for patients with TBDs. What does a “cure” look like for...
New Study on the Genetics of Idiopathic Pulmonary Fibrosis
We are thrilled to highlight a study on the genetics of idiopathic pulmonary fibrosis (IPF), recently published in The Lancet Respiratory Medicine by Team Telomere and Uplifting Athletes’ very own 2026 Young Investigator Draft Pick, Dr. Da (David) Zhang! The...