Dine, Dance, & Donate Previous Honorees

Team Telomere’s Honorees for 2019 Excellence in Medicine: Dr. Suneet Agarwal, Boston Children’s Excellence in Community: Lisa Helms-Guba, Maryland Executive Director’s Choice: Dena Paffas, Pennsylvania and Sonia Bhala, New Jersey Team Telomere’s Honorees for 2018 Excellence...

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Alex

My name is Elizabeth, and I am Alexander’s momma, and Robert is his daddy. Alexander turned seven July 18, 2007, and has the Hoyeraal Hreidarsson (HH) variant of DC. He is also severely delayed from being oxygen deprived in utero (midwife failed to diagnosis placental failure). ​ Alexander was...

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Alexander

Alexander was diagnosed with DC in November of 2005. With the grace of god Alex was diagnosed fairly quickly because his doctor had seen DC before. Alex was immediately started on Anadrol , this drug worked well for about three years when it suddenly stopped working all together. Alex became...

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Becky and Jesse

Hello. My name is Becky and I have a 6-year-old son names Jesse. We were told in 2005 that he had DC. The signs started when he was about 1 ½ . We are from a really small town and no one here had answers to questions. We had a sick child and no doctor could find out what was wrong. We finally got...

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