Those who have been impacted by Dyskeratosis Congenita/Telomere Biology Disorders have a beautiful story to share. We want to hear your story and we want others to hear it too. We encourage you to use this forum to share your experiences, with the hope that it will offer encouragement to those who read it, and provide a way for families to connect and support one another. Team Telomere will also honor these stories through social media and printed materials. This forum is not intended as a vehicle for promoting other charities or personal causes. Therefore we ask that your submissions not include solicitations for donations or promotions of any kind. We reserve the right to edit content deemed inappropriate in this regard.
Share Your Story
The Roskell Family
Gene: TINF2
Jacquie Roskell is a new member of the DCO Community. Jacquie lives in Lancashire, UK with her husband Shaun and their two gorgeous children Woody (7) and Phoebe (5) - oh, and their beloved lab Denzel, too! In May 2017 their lives were turned upside down when Phoebe...
Becky and Jesse
Gene: Unidentified
Hello. My name is Becky and I have a 6-year-old son names Jesse. We were told in 2005 that he had DC. The signs started when he was about 1 ½ . We are from a really small town and no one here had answers to questions. We had a sick child and no doctor could find out...
Send Us Your Story
Each community member who shares their story retains full ownership of it. You have the right to edit your story or request its removal at any time, ensuring that you remain in control of how your experiences are shared. We want to honor your voice and ensure you feel comfortable with how your story is presented.