Grayson Little is 2 years old, diagnosed with Hoyeraal-Hreidarsson Syndrome/ Dyskeratosis Congenita. He carries two TERT gene mutations, inherited from each of his parents, Rachel and Leighton, and has Telomere lengths <1%tile.
Grayson first experienced symptoms of bone marrow failure at 8 months old and underwent two Bone Marrow Transplants in 2018. He currently deals with bleeding oral leukoplakia, failure to thrive, severe developmental delays and is most recently experiencing gastrointestinal issues linked to HHS.
Grayson continues to push through his difficulties and is a happy toddler, living with his family in Brisbane, Australia.