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Media

Read about stories we've found in the news and media about Telomere Biology Disorders.

Former Patient Donates Toys For Kids at Phoenix Children’s Hospital

Former Patient Donates Toys For Kids at Phoenix Children’s Hospital

Read article here.

Layla Sands, Charlotte Teen with One-in-a-Million Genetic Condition Passes Away

Layla Sands, Charlotte Teen with One-in-a-Million Genetic Condition Passes Away

Read article here.

Front Royal Family Thankful for 9 Year Old’s New Liver

Front Royal Family Thankful for 9 Year Old’s New Liver

Read article here.

How Telomere Length Testing Can Save Lives

How Telomere Length Testing Can Save Lives

Read article here.

Gabrielle Stephens Rare Disorder Causing 7-year-old to Grow Old Before Her Time

Gabrielle Stephens Rare Disorder Causing 7-year-old to Grow Old Before Her Time

Read article here.

Repeat Dx: Julian’s Stem Cell Transplant Story

Repeat Dx: Julian’s Stem Cell Transplant Story

Read article here.

Repeat Dx: Mike Shares His Experience with Dyskeratosis Congenita for Rare Disease Day

Repeat Dx: Mike Shares His Experience with Dyskeratosis Congenita for Rare Disease Day

Read article here.

Repeat Dx: Heather Shares Her Experience with IPF for PF Awareness Month

Repeat Dx: Heather Shares Her Experience with IPF for PF Awareness Month

Read article here.

Team Telomere Songs

Team Telomere Songs

Listen to music here.

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Supporting families affected by Telomere Biology Disorders, including Dyskeratosis Congenita.

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