Media
Read about stories we've found in the news and media about Telomere Biology Disorders.
Repeat Dx: Julian’s Stem Cell Transplant Story
Repeat Dx: Mike Shares His Experience with Dyskeratosis Congenita for Rare Disease Day
Repeat Dx: Heather Shares Her Experience with IPF for PF Awareness Month
Team Telomere Songs
Little Boy with Rare Genetic Disorder Named Honorary Firefighter in Mackay
A brave little boy, who’s battling a rare life-threatening genetic disorder, has been named an honorary firefighter at Mackay’s Alfred Street fire station. Four-year-old Grayson was given his very own uniform, drove a fire truck and met his heroes. “We just want to fulfill his life with the time we have with him and everything that makes him happy and excited.” – Mum, Rachel Little.
Colleen, Former Team Telomere President, shares her story
Not All Heroes Wear Capes: Taking on Dyskeratosis Congenita
Horizon Therapeutics
