Where do I begin to describe my Alex? He was such an old soul filled with so much knowledge and love. Alex endured more in his sixteen years than most do in a lifetime, every medical obstacle was tackled with a smile and a pragmatic approach. Alexs main goal in life was to help others suffering from Dyskeratosis Congenita, he was very clear of his wishes in the end. We have come along way since Alex was diagnosed at three years old, Keep the faith and know that Alex and many doctors are fighting for you.