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Team Telomere is partnering with Citizen Health!

We are thrilled to launch a new digital natural history study for Telomere Biology Disorders! Signing up takes just five minutes - and you can securely organize your medical records in one place while playing a direct role in advancing research!

To kick things off, we are launching a 100 Participants in 100 Days campaign. Be one of the 100!
Learn More & Sign Up Today
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Gabrielle Stephens Rare Disorder Causing 7-year-old to Grow Old Before Her Time

Gabrielle Stephens Rare Disorder Causing 7-year-old to Grow Old Before Her Time

Read article here.
Repeat Dx: Julian’s Stem Cell Transplant Story

Repeat Dx: Julian’s Stem Cell Transplant Story

Read article here.
Repeat Dx: Mike Shares His Experience with Dyskeratosis Congenita for Rare Disease Day

Repeat Dx: Mike Shares His Experience with Dyskeratosis Congenita for Rare Disease Day

Read article here.
Repeat Dx: Heather Shares Her Experience with IPF for PF Awareness Month

Repeat Dx: Heather Shares Her Experience with IPF for PF Awareness Month

Read article here.
Team Telomere Songs

Team Telomere Songs

Listen to music here.
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Supporting families affected by Telomere Biology Disorders, including Dyskeratosis Congenita.

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