Team Telomere Community Summit 2024

Welcome to Team Telomere’s Community Summit, where we are tying the laces of research and patient experience together! Join us July 8-11, 2024, at the scenic Coeur d’Alene Casino Resort Hotel in Worley, Idaho, USA.

Over the years, Team Telomere has hosted many events for the community. We are excited to launch the Community Summit to continue supporting, educating, and bringing everyone together from across the globe. This experience is open to all community members including people with TBDs, their families, care partners, and our bereaved community.

Attendees can expect:

• Activities: Join fellow community members to enjoy time at the beach, book an appointment at the spa, spend a day at the Coeur Center with pool access, explore the scenic surroundings, fly fish, tour downtown Coeur d’Alene, and more.
• Community Support: Create connections with individuals and families impacted by Telomere Biology Disorders.
• Education: Engage with leading telomere and TBD global experts and attend the special Research Poster Session where the latest work being done in all areas of telomere research will be shared with our community.
• Celebration: Celebrate our community and its accomplishments while honoring pioneers in this field during the Boots & Genes gala on Wednesday night.

Registration

Registration for an individual includes:

• Some meals are provided, check the schedule released in April for details
• 3 nights lodging accommodations
• 1:1 meetings with TBD medical experts
• Research Poster Session – one hour of beverages, appetizers, and research education
• Activity programming opportunities
• Ticket to attend Boots & Genes, our Community Celebration & Award Ceremony on Wednesday night

Note: All attendees under the age of 12 must be accompanied by an adult at all times during the Summit.

Registration for this event is valued at approximately $900 per person. Team Telomere will be covering these costs in continuation of our commitment to community support. However, if you are willing to help support these costs with a donation, any contribution is greatly appreciated.

Registration is now closed. 

Questions should be directed to summit@teamtelomere.org. 

Lodging & Travel Information

The Community Summit will be held at Coeur d’Alene Casino Resort Hotel in Worley, Idaho.

Team Telomere will cover lodging, some meals, and special activity expenses. The registration form contains questions to ensure the appropriate lodging accommodations are reserved for each attendee. We will do our best to accommodate everyone.

Registrants are recommended to fly into Spokane International Airport. Shuttles will be provided to and from the venue by Team Telomere. More details will be provided to registered community members.

Accessibility

Detailed venue and activity accessibility information will be forthcoming.

Reach out to summit@teamtelomere.org for questions pertaining to any access needs for the event. 

Sponsors

Team Telomere thanks our generous partners for their support of the Community Summit.

Lantern Sponsor

Flame Sponsor

Ember Sponsor

Kindling Sponsor

Additional Community Summit Sponsors

Never Alone Sunset Cruise Sponsor

Join us!

Here is what participants in Team Telomere’s previous community gatherings have said:

“We really enjoyed connecting and sharing experiences… Through knowledge of [other’s] experiences, we are able to be made stronger. Sharing stories… provided insight and comfort as well as reminded us that we are not alone.” — Parents of a child with a TBD

After our Team Telomere Day in Rochester, MN, one individual impacted by a TBD told her mom, “I think this is just what we needed mum.”

“Our Cincinnati [Team Telomere] Day was very special to us! We really enjoyed reconnecting with [families] and getting to meet new families we had been keeping up with through Facebook. It meant a lot being with the doctors in a casual setting and learning the latest medical updates.” — Mother of an individual with a TBD

The Community Summit 2024 truly is a testament to a favorite saying in our community “We are better together!” We look forward to having you join us and creating lasting memories together.