Dominic aged 33 was the most gentle soul you could ever meet and to those lucky enough to be in his life were truly blessed with the love and support he gave them while fighting his own battle daily. I know I speak for all my family when I say he truly was the bravest...
My husband, Chad, was a super healthy person who suddenly became super sick. Although we had known for a decade that Chad’s liver was deteriorating for mysterious reasons, he still felt well enough to bike to work every day and travel the world with me and our...
My mom passed away when I was 9 from complications of aplastic anemia and liver cirrhosis. During her time, she was only ever told her aplastic anemia was idiopathic. I was diagnosed with Dyskeratosis Congenita (TERC mutation) at 29, after begging and fighting with...
My Father was the first one of 4 siblings to find out he had DC in 1983 he died in 1985 then my uncle, Aunt and my cousin all succumbed to DC it was not known then what he had the doctors tried everything with no luck. Well fast forward today there are a lot of people...
On the 23rd of December 2020 my life changed forever when my mother’s heart stopped beating. At only 58 we were robbed of so many years together, we had so much to look forward to. Spending time with her grandkids, cruises with her husband – her favorite thing to do...
Alexander Jamie Black is a warrior. He is an amazing husband and father of 6 children. In 2016, when his youngest was only 12 months old, he was diagnosed with Aplastic Anemia. He became transfusion dependent and his life changed forever. He always kept positive about...
