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Team Telomere is partnering with Citizen Health!

We are thrilled to launch a new digital natural history study for Telomere Biology Disorders! Signing up takes just five minutes - and you can securely organize your medical records in one place while playing a direct role in advancing research!

To kick things off, we are launching a 100 Participants in 100 Days campaign. Be one of the 100!
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Editing TINF2 as a Potential Therapeutic Approach to Restore Telomere Length in Dyskeratosis Congenitaby Dr. Alison Bertuch and Dr. Dirk Hockemeyer

Editing TINF2 as a Potential Therapeutic Approach to Restore Telomere Length in Dyskeratosis Congenita
by Dr. Alison Bertuch and Dr. Dirk Hockemeyer

Despite their frequency and severe impact on children in the TBD community, mutations in the gene TINF2 remain some of the least understood causes of telomere biology disorders (TBDs). Significantly, one central question related to how these mutations cause disease...
Characterization of Telomere Maintenance in Tumor Models of Dyskeratosis Congenitaby Dr. Judy Wong

Characterization of Telomere Maintenance in Tumor Models of Dyskeratosis Congenita
by Dr. Judy Wong

Our amazing 2020 Team Telomere Million Dollar Bike Ride Grant Awardee was Dr. Judy Wong! Her project, “Characterization of Telomere Maintenance in Tumor Models of Dyskeratosis Congenita”, worked to understand how cancer develops in individuals with Telomere Biology...
Studying the Functional Interaction Between Compound Heterozygous TERT Mutationsby Dr. Tracy Bryan

Studying the Functional Interaction Between Compound Heterozygous TERT Mutations
by Dr. Tracy Bryan

My laboratory first started work on telomerase, the molecule that elongates telomeres, more than 20 years ago; at the time, we were interested in the fundamental biochemistry behind this intriguing molecule, and how we might target it for cancer therapy. This...
Disease Progression and Clinical Outcomes in Telomere Biology Disordersby Dr. Marena Niewisch and Dr. Sharon Savage

Disease Progression and Clinical Outcomes in Telomere Biology Disorders
by Dr. Marena Niewisch and Dr. Sharon Savage

Individuals with telomere biology disorders (TBDs) like dyskeratosis congenita (DC) are confronted with numerous health issues during their lifetime. TBDs do not always look the same – some people may have symptoms very early in life while others develop their first...
First Cell Infusion Given in Phase I/II Study of EXG34217 in Patients with Telomere Biology Disorders with Bone Marrow Failureby Dr. Kasiani Myers

First Cell Infusion Given in Phase I/II Study of EXG34217 in Patients with Telomere Biology Disorders with Bone Marrow Failure
by Dr. Kasiani Myers

I am very excited to report that in the month of February we successfully gave our first adult with a telomere biology disorder EXG34217, which is an infusion of their own bone marrow stem cells that have had telomere lengthening study therapy at Cincinnati Children’s...
Next Entries »
Supporting families affected by Telomere Biology Disorders, including Dyskeratosis Congenita.

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