Media Read about stories we've found in the news and media about Telomere Biology Disorders. Fighting for the Next Generation of Patients – and for Himself: Matthew and Dyskeratosis Congenita Read more San Francisco boy with rare bone marrow disease still searching for donor Read more Executive Director, Katie Stevens on the Two Disabled Dudes Podcast: A Soft Blanket and a Bold Mission Take a listen! Of mice and men: WSU team first to mimic our DNA end caps in rodents to study aging on the cellular level Read article here. WWE Superstar Seth “Freakin” Rollins meets Aaron, a TBD Community Member Read article here. ‘Something to celebrate’: Community turns out for rainy fundraising walk Read article here. Maine mom pens son’s journey with rare genetic disease Read article here. Heidi Carson Reflects on Widowed Parenting and Finding Meaning Through Rare Disease Advocacy Listen here. New Liver, New Outlook Read article here. « Older Entries
Fighting for the Next Generation of Patients – and for Himself: Matthew and Dyskeratosis Congenita Read more
Executive Director, Katie Stevens on the Two Disabled Dudes Podcast: A Soft Blanket and a Bold Mission Take a listen!
Of mice and men: WSU team first to mimic our DNA end caps in rodents to study aging on the cellular level Read article here.
Heidi Carson Reflects on Widowed Parenting and Finding Meaning Through Rare Disease Advocacy Listen here.