Research Corner

We're excited to share groundbreaking news from the International Society for Heart and Lung Transplantation (ISHLT)! For the first time ever, medical providers now have official guidelines for diagnosing and treating short telomere syndrome (STS), better known as...

Advancing Awareness, Research, and Diagnosis in Telomere Biology Disorders Team Telomere attended the 2025 American Society of Hematology (ASH) Annual Meeting, where we represented the Telomere Biology Disorder (TBD) community on the global stage. ASH brings together...

Advocating for our Pulmonary Fibrosis Community  Team Telomere attended the Pulmonary Fibrosis Foundation Summit, where leaders in pulmonary medicine, genetics, and patient advocacy gathered to discuss the care for people living with interstitial lung disease and...

Enhancing Diagnostic Testing for People with Telomere Biology Disorders This roundtable, hosted by Team Telomere, examined strategies to improve the identification and diagnosis of individuals with Telomere Biology Disorders. Discussion focused on: (1) optimal...

In November 2024, Team Telomere hosted our inaugural Telomere Research Accelerating Collaborative Translational Science (TRACTS) Roundtable. TRACTS Roundtables are dynamic, quarterly gatherings where researchers and clinicians in the TBD field can collaborate to...

Team Telomere is thrilled to share highlights from our participation at the 2024 American Society of Hematology (ASH) Annual Meeting! We attended several impactful TBD-relevant poster and oral presentations and are excited to bring you research summaries from these...

Take a look at this recent paper in British Journal of Hematology titled "Different phenotypes with different endings—Telomere biology disorders and cancer predisposition with long telomeres". This was published by Dr. Sharon Savage and Dr. Alison Bertuch with many of...

Medscape InDiscussion: Idiopathic Pulmonary Fibrosis is a podcast series where thought leaders and clinical experts share their diverse insights and practical ideas for optimizing patient care. In Episode 6, Dr Jeffrey Swigris and Janet Talbert discuss the current...

During our Scientific Summit this past July, Abstract Awards were given to three researchers for their submitted work in three categories. Abstract awards are often given to recognize research excellence and help researchers develop professionally. Once again, we...