During our biennial Camp Sunshine, we recorded the educational sessions delivered by many of our experts. These sessions reflect many of the areas of our community’s needs and are available for on-demand viewing.
At our Camp Sunshine in 2025, we brought together an incredible lineup of experts and advocates to share insights on topics including TBDs 101, advocacy, partnership, patient-centered research, hematology, pulmonology, new and emerging therapies, adult care, and more.
Telomere Biology Disorders 101
Citizen Health Community Introduction
Bone Marrow Failure Screening and Management
Lung Disease and TBDs & What are clinical trials?
Making Medicines for Telomere Diseases
Updates on Gene Therapy for Telomere Elongation in TBD
Caring for Adult Patients with TBD
At our Camp Sunshine in 2023, we brought together an exceptional lineup of speakers with expertise in hematology, hepatology, pulmonology, genetic counseling and family planning, psychosocial support, cancer, pediatrics, adult care, young adult transition and care, rare disease advocacy, therapies, transplantation, and TBD research.