Video Educational Series

During our biannual Camp Sunshine in 2023, we recorded the educational sessions delivered by many of our experts. These sessions reflect many of the areas of our community’s needs and are available for on-demand viewing.

At our Camp Sunshine in 2023, we brought together an exceptional lineup of speakers with expertise in hematology, hepatology, pulmonology, genetic counseling and family planning, psychosocial support, cancer, pediatrics, adult care, young adult transition and care, rare disease advocacy, therapies, transplantation, and TBD research.

Keynote Speaker

Telomere Biology Disorders 101

Genetic Counseling & Family Planning

Psychosocial Session

Liver Complications & Transplant

Hermatologic Complications

Teen and Young Adult Care and Transition

Children Routine Health

Adult Routine Health: Hematologic Management

Patient-Centered Research

Non-Transplant Therapies for Bone Marrow Failure in TBDs

Policy 101

Cancer in Telomere Biology Disorders

Bone Marrow Transplantation for TBDs

Research Advances in TBDs