Remembering Alexander Jamie Black
Alexander Jamie Black is a warrior. He is an amazing husband and father of 6 children. In 2016, when his youngest was only 12 months old, he was diagnosed with Aplastic Anemia. He became transfusion dependent and his life changed forever. He always kept positive about...
Former Patient Donates Toys For Kids at Phoenix Children’s Hospital
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Layla Sands, Charlotte Teen with One-in-a-Million Genetic Condition Passes Away
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Hamish Crowe
Gene: TINF2
Hamish was diagnosed with Dyskeratosis Congenita (more specifically Hoyeraal-Hreidarsson Syndrome) at 2 years old following almost 18 months of testing to determine the reason behind his critically low blood counts. Just 4 months after diagnosis, he was admitted in to...
