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Media

Read about stories we've found in the news and media about Telomere Biology Disorders.

New Drug Regimen Proves Ideal for Patient with Rare Genetic Disease

New Drug Regimen Proves Ideal for Patient with Rare Genetic Disease

Read article here.

Gabby’s Camp Quality Story: Doing more than she thought she could

Gabby’s Camp Quality Story: Doing more than she thought she could

Read article here.

RARE Health Equity Report: Building a More Inclusive Rare Disease Community

RARE Health Equity Report: Building a More Inclusive Rare Disease Community

Download here.

RARECAST: A Next-Generation RNA Therapy Targets Telomere Disorders

RARECAST: A Next-Generation RNA Therapy Targets Telomere Disorders

Listen here.

Telomeres and Aplastic Anaemia

Telomeres and Aplastic Anaemia

Read article here.

QPS swears in five-year-old boy who dreams of becoming an officer

QPS swears in five-year-old boy who dreams of becoming an officer

Read article here.

Expanded dreams: How medical advances are giving hope to kids with rare disease

Expanded dreams: How medical advances are giving hope to kids with rare disease

Read article here.

Jeans For Genes: Hamish Crowe

Jeans For Genes: Hamish Crowe

Read article here.

Jeni Shares Her Experience with Short Telomeres for Rare Disease Day

Jeni Shares Her Experience with Short Telomeres for Rare Disease Day

Read article here.

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Supporting families affected by Telomere Biology Disorders, including Dyskeratosis Congenita.

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