Relive the memories and explore highlights from past Team Telomere events that brought together impacted individuals, families, researchers, and clinicians. Each gathering reflects our commitment to community, collaboration, and advancing care for those impacted by Telomere Biology Disorders.
Cocktails & Chromosomes: New York City
On August 5, 2025, Team Telomere hosted its first-ever Cocktails & Chromosomes: NYC at Hogan Lovells, bringing together over 170 guests including families, friends, clinicians, and researchers for an evening of connection and celebration. Together, we raised $75,000, surpassing $1 million toward our $1.5 million goal to fund the first-ever clinical trial for Telomere Biology Disorders. The night featured powerful stories from community members, live music, and meaningful moments that highlighted the strength, progress, and hope of our shared mission.
Community Summit 2024
Held July 8–11, 2024, at the beautiful Coeur d’Alene Casino Resort in Idaho, the inaugural Community Summit brought together individuals and families impacted by Telomere Biology Disorders for four days of education, connection, and celebration. Attendees enjoyed expert-led sessions, community activities, and crossovers with the Scientific Summit.
Scientific Summit 2024
From July 8–11, 2024, the Scientific Summit gathered leading global experts to explore the latest advances in telomere biology research, diagnostics, and care. With a sessions spanning translational research, equity, emerging therapies, and psychosocial care, the summit fostered interdisciplinary collaboration and forward momentum.
Boots and Genes
Team Telomere hosted its fourth annual gala, Boots and Genes, a celebration honoring the strength, progress, and unity of the Telomere Biology Disorder community. The evening featured awards recognizing outstanding contributions, live music, a silent auction, and joyful moments shared by families, researchers, and clinicians.